http://mv-voice.com/square/print/2013/07/30/baby-with-no-kidneys-treated-at-lucile-packard


Town Square

Baby with no kidneys treated at Lucile Packard

Original post made on Jul 30, 2013

A tiny baby born without kidneys to a United States Congresswoman is receiving treatment at Lucile Packard Children's Hospital. The baby likely be the first to survive a diagnosis previously considered fatal.

Read the full story here Web Link posted Tuesday, July 30, 2013, 11:21 AM

Comments

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Posted by Lucy Dad
a resident of Castro City
on Jul 30, 2013 at 11:50 am

I'm continually astounded by the care that this wonderful facility is capable of. We as residents of the area are HIGHLY fortunate to have Stanford and Lucy P's in our backyards. Get well soon baby Abigail!


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Posted by So lucky
a resident of Jackson Park
on Jul 30, 2013 at 11:55 am

Who is paying for all this extraordinary care? I'm sure we can find solutions to many medical problems with unlimited resources. This kind of care is not available to all Americans.


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Posted by Thoughtful
a resident of Old Mountain View
on Jul 30, 2013 at 2:11 pm

So Lucky, you are correct about this being expensive. An additional thing to value is that by helping this baby to live we will learn more about our physiology. That knowledge will most likely lead to breakthroughs that do, indeed, have benefits for all of us.

Think of all the benefits we got from the Space Program. Where would we be without Velcro, for example?


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Posted by So lucky
a resident of Jackson Park
on Jul 30, 2013 at 2:28 pm

Thoughtful, I do understand that but it's not going to help the poor black mother whose unborn child has the same condition. It's politicians like this woman who create an unjust system that she is reaping the benefits of. And then will be a hero for somehow helping the rest of us. Pretty sure this is not the first baby to come along with this condition, they could have tried these techniques before but they did not because those folks did not have enough money to have access to this kind of care. You are right though, in the end we will all benefit from trickle down medicine.


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Posted by Mary
a resident of Martens-Carmelita
on Jul 30, 2013 at 2:31 pm

Ahhh... Abigail is my favorite female name. Never heard of Potter's Syndrome... lucky me.
Astounding if this child survives. Puzzled about how her life would look without kidneys. Transplant possible maybe?

As earlier commentor pointed out: we are so lucky to have the Stanford Lucy P's facility in our own backyard. A step above vav children's care it seems to me.


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Posted by Jamma
a resident of another community
on Jul 30, 2013 at 3:37 pm

My daughter had a potter's baby 13 years ago. She sought out help at Stanford and was referred to UCSF. She and I made a couple visits and found a doctor willing to give the infusion of fluids a chance. They said is should work in theory but they were not aware of it being attempted.

She went for it and was ecstatic at being able to give her son a chance to live. Her story didn't have the same results, but she gave him a chance. Maybe her trying this opened the door to this success.

I am proud of her for seeking all possible choices.


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Posted by Anna S.
a resident of Rex Manor
on Jul 30, 2013 at 9:15 pm

I, too, would like to give a shout out to the amazing doctors and nurses at Stanford/LPCH. We are lucky to have them nearby. However, with respect to this particular case, I note that the mother is a Republican representative from Washington State. I wonder if she supports Obama's health care reform, which would put such extraordinary care within reach of folks who aren't special enough to be covered by the Federal Employees Health Benefits Program.


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Posted by Brian
a resident of Old Mountain View
on Jul 31, 2013 at 10:35 am

2013 HR 45 Repealing the Patient Protection and Affordable Care Act and Health Care-Related Provisions in the Health Care and Education Reconciliation Act of 2010 - Congresswoman Beutler voted yea.

2012 HR 6079 Repealing the Patient Protection and Affordable Care Act of 2010 - Congresswoman Beutler voted yea.


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Posted by Otto Maddox
a resident of Monta Loma
on Jul 31, 2013 at 3:32 pm

First off, let me just add to what has already been said about LPCH. My daughter spent the first 29 days of her life there and we were to lucky to have a world class children's facility so close.

Second, some of you have no idea what you are talking about. During those 29 days I met many parents with children in the NICU along side ours who had no insurance. Yet they received the same care as my daughter did.


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Posted by Old Ben
a resident of Shoreline West
on Aug 7, 2013 at 9:07 am

I'd rather see my taxes put to a better use, like spaying and neutering members of Congress.


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Posted by Amazed
a resident of another community
on Aug 8, 2013 at 9:46 am

This is such an amazing story!


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Posted by AJ
a resident of another community
on Sep 6, 2013 at 7:01 am

I dont want to seem cold or unfeeling, but what is wrong with nature's way? Is it ethical to be saddling not only all our higher insurance costs but also this poor life with a lifetime of surgeries, pain and suffering. Not to mention either of the two variables - not being able to have her own family or worse, passing on the genetics of this condition to her offspring whereby increasing our dependance on extreme medical care. Would not it be better, truly sad and heart-wrenching yes, but better to just say goodbye and sorry, and move on with another pregnancy. We all need to step back. Realize that nature is the best judge and has been for millions of years, and that we are not gods. We need to stop thinking like we are.


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Posted by a resident from another town
a resident of another community
on Sep 7, 2013 at 2:41 pm

This is an amazing story, I lost my baby boy, Jonathon, 21 years ago to Potter Syndrome. Praying for baby Abigail and her family, Praise God for miracles, because there is nothing worse than to lose a baby-Jonathon lived for 2 hours and Praise God that my husband and I had that chance to hold and love him until he went up to heaven!! Praying for a miracle for your baby girl-